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Jan replied to Ed's inquiry on one of the Email discussion groups......
Ok Ed, lets start at the beginning. First you fell like someone
just punched you in the stomach when your ob calls and says he wants to
see you about your amnio results, then the panic and huge fear of the
unknown as you drive to you Dr., then the confusion, grief, guilt
and AGAIN panic when you are told your baby son will not be like other
little boys, the numbness as you go home and try to get a grip, then the
envy when you see other pg women and think to yourself, "I'll bet her
baby is normal. Why did this happen to me??"
You stay at this point for awhile - it varies from mom to mom. But you feel an enormous amount of self pity, of grief, for the baby you had hoped for was not going to ever be.
Then you start to get a grip on your life again. You go to
libraries, bookstores, the Internet and try to find out everything you can
about this "syndrome" that you are told your child WILL have. Then,
finally, there is a light, a ray of hope. You read and discover things that
tell you that you were originally misinformed. This child you are
carrying, this baby boy has a chance at a full and normal life - a GOOD
chance! He has an extra chromosome but he may NEVER have this "Klinefelter's
Syndrome" that you were told was "unavoidable". He might have some
developmental delays, maybe some speech problems but you find out
about Early Childhood Intervention and see that there IS help if he needs
it.
You start to feel almost "normal" about your pregnancy again.
Your little boy will be fine! You know what you are dealing with now and
that he will grow up to be a intelligent, caring, wonderful person - just
like any other little boy. Sure, things won't be perfect, but when is
life ever perfect? And then you have your baby boy, who you've waited
and worried about for so long. And he's absolutely perfect and you love
him SO MUCH that it hurts. Maybe even a "little more" than you loved
your other children at this moment. Because you share a bond and a
challenge - and together you will be able to get through anything, ANYTHING!
Words from my heart,
Jan
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