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Letter #2

Dear Mary:

I've got to tell you that what you wrote in your letter to Even Exchange, really hit home with us.
Like you, I was told about our son through amniocentesis. At the time, we too, had a
very hard time finding an accurate idea on what to expect. We were sent to genetic
counselors. All they could tell us were "clinical studies" on K.S. males done in
institutions. These, as I'm sure you know, were very disturbing. To make matters worse,
I majored in Psychology and through my old textbooks, found that all K.S. males were
thought to be severely retarded.

We were given one week to decide to keep or terminate the pregnancy. During that time, I
spent many hours on the phone trying to get some answers. There were no support
groups near us or for that matter any families willing to answer questions. Finally, I
reached Dr. Robinson in Denver, CO who gave us all the answers we needed. He was
very optimistic and helpful. He has done a twenty year study on K.S. boys from birth
and provided information for the book, "Klinefelter Syndrome, The X-tra special boy".

So now we have a very bright, healthy, "normal acting", four year old boy. He is a little
spoiled, but being the youngest of three boys, that can be expected. He attends an early
education program in our community which deals with learning disabled children.
He is doing very well and will attend Kindergarten right on schedule. In fact, he
is so normal, he wouldn't even qualify if not for the K.S. diagnosis. We feel keeping
him in the program will help if any problems do crop up. This may sound a little over
protective, but what choices do we have?

If you know of any support groups in our area please let us know. Not just for ourselves, but
we would like to be able to help any new parents get through the diagnosis of K.S. and to
maybe see a normal and well adjusted K.S. boy who was given a chance to live.

Fell free to contact us to compare notes or to just chat. Thanks for your letter.

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