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I do think that children with KS are more passive generally. .
What you are hearing about on the list is not really aggressive behavior. The outbursts are more like a bright flash of lightning on a clear day. In my opinion it may be due to a combination of things. First we know the hormones can be out of balance from the start, and second having to deal with possible language deficits each and every hour of the day would tend to make anyone cranky. When you add to that school teachers who don't appreciate or understand the children's unique learning styles and peers who aren't the kindest to children who have speech delay you are setting the stage for outbursts. But please don't stop reading here!!
Children who are diagnosed early and have access to current, positive parental intervention fair so much better. They are generally blessed with parents who are concerned about every facet of their "human experience". This concern translates into early intervention when needed, pulling the child out of frustrating situations, being aware of when the child has reached his "limit" of tolerance and hormone replacement "if" and "when" needed. .
The difference between children whose parents got an early diagnosis and proper information and those whose didn't are like apples and oranges..
I contend that if I were blessed, yes blessed, with another son with KS I would do things ever so differently. I would listen to my heart more and professionals less. I would snuggle more, read him more books regardless of his language impairment, I would not force him to interact if he didn't want to, I would allow him quiet rooms and simple play by himself (I am sorry I forced my son into situations that I understand now made his life harder - because school professionals told me it was "best"). I would buy more legos and hot wheels. I would swing with him more and let him take as many baths as he wanted a day. I would let him tell me about his day by using a sand tray and tous. I believe with all my heart that my son would have been less frusterated if I had done these things.
It's been 10 years this month since we found out about Greg's diagnosis of KS. He had a tough time in the beginning, so did we. We only ever wanted to do right by him and all our children (four). But despite all the tough times - he is doing great now. He just made Eagle Scout last week, he's off to the Senior Prom with his girlfriend Saturday (May 2nd) nightr, he drives, he works, he plans on college in the fall and marriage and kids someday.
I know for a fact your son is going to be fine becasue you are HERE!!!
If you didn't want the best for your son you wouldn't be asking us all of these questions. Good for you!!! This is why your son is going to succeed - because with parents like you how could he do otherwise?
Melissa Aylstock - Klinefelter Syndrome & Associates
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